The Lack of Order within my Extremes
This last fall, I was diagnosed with Bipolar I Disorder. I've shared this information with some friends and only a handful of people in my family. Mostly, I chose to share only with people who might respond in an understanding and gentle manner. This is one of the ways I take care of myself.
As a result, my mother does not have any idea that I have (have had) Bipolar Disorder. I'm not sure if I will tell her and, if so, how I will tell her. Since Bipolar is often present in more than one family member, I'd like to learn if there might be someone in my family history who had Bipolar Disorder (even if it went undiagnosed) - I suspect this may have been the case with one of my grandparents.
I've struggled with telling people and worry that it makes some folks uncomfortable. People respond differently, though. It's interesting. Some get that "aha moment" look (sorry to quote Oprah) and I can tell that much of my mood swingage and behavior unpredictability suddenly all makes perfect sense to them. People who already know someone with Bipolar Disorder have been the greatest - they know how to respond in a very gentle and respectful way that doesn't make me feel defective. I get a little bit annoyed when I reveal this information to someone and their response is: "yeah, I think I might be Bipolar, too." I mean, I don't want to rain on anyone's parade or anything, but that just seems really insensitive and when I'm struggling to tell something that is difficult for me, "me too" is not the first thing I want to hear in response. Maybe that makes me a hypersensitive wuss, but I don't care.
There are a couple of reasons why I feel compelled to have this information out in the open.
First of all, I have been symptomatic for many years and have not been correctly diagnosed until recently. The new medication that I am on has completely changed my world and I wish I could have been diagnosed and medicated sooner (plus, if my words -here, or in my daily life- help even one person who is struggling the way I was, it's worth it). Why couldn't I get to this point any sooner? Let me explain.
Here are some of the red flags of my diagnosis: depressive episodes (both major and minor, recurring, sometimes without explanation or not pertaining to current upsetting situations), chronic and debilitating insomnia (during which time I would often experience bouts of creativity - writing all night long, or go on cleaning binges, or rearrange the furniture in the house, or cook gourmet dishes all night, etc.), extreme variances in energy levels and irritability levels and degree to which I would participate in things socially, then there were the sex and shopping binges.
Seems pretty cut and dry, huh? However, much of what a medical/psychiatric professional is able to conclude depends on how the information is reported. Without having any idea that I was skewing an analysis of my problems, I have always placed an emphasis on depression and insomnia when I sought treatment. And then I would be treated for depression and insomnia. Why wasn't I reporting manic episodes? Because I had no fucking clue that I was experiencing manic episodes. I even had a therapist, many years ago, ask if I ever experienced manic episodes. Not really knowing what this meant in psychological terms, only what I thought it meant socially/pop-culturally, I looked at him indignantly and gave him an adamant "no." Since he had no reason to believe that I didn't know what the hell he was really asking me, he accepted my response and moved on.
Herein lies the problem: when asked if I had manic episodes, my thought process went like this ---> manic episodes? ---> mania? ---> maniac? ---> who is a maniac? ---> Charles Manson, Hitler, Aileen Wuornos ---> have I gone on crazy-ass killing sprees? no, I have not ---> I'm not a maniac, what a dumb question. Hence, my response to him.
As a result, did I ever tell this therapist about some of the things I do in the middle of the night when I had insomnia and all of the energy I had that enabled me to do these things? Of course not! They just didn't seem important to me because I'd spent so many years experiencing these things on-again and off-again that I just thought it was no big deal - I'm just a little weird and that's just me.
So, I've been taking medication (Lamictal, no Lithium for me because it would make my Essential Tremor worse) since last fall and, not only have I not experienced any polar mood swings (or anything remotely resembling them), but my insomnia is virtually GONE. In the past few months, I've had insomnia about twice and, both times, it has been situationally related. This is a major improvement over having horrible insomnia 4-7 nights a week, every week. Sure, I got a lot of writing and schoolwork done then, but at some expense to my health. While I don't miss my depressive episodes and how they felt and all of the crappy thoughts and self-talk that come along with it, I have to admit that I miss my middle-of-the-night writing binges a little. I fear that I am less creative now (on medication) and less interesting, as a result. I worry that it will make me less successful, probably because I would often measure my self-worth by what I was able to accomplish in the middle of the night when the rest of the world is sleeping. Ultimately, though, I believe the medicated route is more beneficial to me in the long run, even though I hate the idea of having one more pill in the til-death-do-us-part pillbox. But now I know what normal feels like and what it's like to sleep seven hours a night every night and there's something really likable about those things.
There was another reason that I wanted to bring this issue up. Three years ago, an old friend of mine, E, shot herself. Sadly, she was struggling enormously and had been diagnosed with Bipolar Disorder, amongst other things. Even more sadly, she chose not to share this information with anyone she knew, including her closest of friends. As a result, when she would seemingly disappear and not return phone calls and barely acknowledge her disappearance when she would return, we all just thought she was a flake. And a liar. Consequently, E would frequently find herself losing friends and attempting to acquire new ones. After one too many times of dealing with her lying, betraying, and disappearing, I told her that I couldn't be friends with her any more. She responded to my lengthy letter of explanation as to why I could no longer be her friend with an email. It said, "Great to hear from you. Let me know when you're in Portland again [I lived in LA at the time] and we'll do lunch."
I didn't know what to make of her apparent denial and I had no clue about her mental diagnosis, nor had I really thought beyond the fact that she could be a flake and would get on my nerves. I never did rekindle the friendship or run into her when I moved back to Portland. It was about a year or so after I sent her that letter that she killed herself. I attended her memorial service with a dear friend of mine who was also close to E at one time and then later took some distance from her. It was then that we both learned that she had struggled with Bipolar, and all of its symptoms, and that she wasn't so good about staying on medication.
It breaks my heart that she was unable to reach out to anyone and perhaps, if she had, she might have had more empathy in her life and fewer people abandoning her. I was saddened when I once did a Google search for her after she had passed away. E had taught English Comp. at a couple of the local community colleges and I stumbled upon a site that posted student reviews of professors. E had two reviews, both of which were graded 'F.' One student even went so far as to explain her review by referring to E as 'Miss Flaky Pants.'
So this is the part where I get to my point. And it is this: if some of the symptoms I've described sound like you or someone you know, you might want to further investigate. Talk to your doctor, your therapist, or someone you know with a PhD (okay, kidding...or maybe not). Don't take my word for anything, I'm not a doctor - I'm just a kitty. But just remember that if you have a Miss Flaky Pants in your life, there might be more than meets the eye. If I knew then what I know now about E, I would have responded to her irrational behavior much differently, or so I like to think.
Also be kind to yourself and to others.